I never imagined that I would see cystic fibrosis as something to be grateful for. But now, in my 23rd year of life, I am thankful that CF has allowed me to open up about my struggles through spoken word poetry and find freedom in shared humanity.
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Growing up with cystic fibrosis, my parents always encouraged me to take responsibility and be open and honest about my disease. That's why my number one piece of advice for parents of kids with CF is to entrust your child with small bits of responsibility at an early age so that they can take care of themselves down the road.
When it comes to lung function, I like to remind myself that the numbers aren't everything. Although my numbers may be “low,” they do not define my ability to live a full, happy life.
On Mar. 11, the Cystic Fibrosis Foundation presented the Alex, Jena and Dream Big Awards to leaders in the CF community for their dedication to the Foundation's mission of finding a cure.
As a mother of three sons with cystic fibrosis, Mary along with her husband, Harry, was determined to do all she could to find a cure.
The U.S. Food and Drug Administration (FDA) today expanded its approval of three CFTR modulators to include additional people with CF who have certain rare mutations. The approval enables more than 600 individuals with CF who were not previously eligible for modulators to access drugs that treat the underlying cause of their disease for the first time.
Throughout my 31-year-long career, I kept my cystic fibrosis a secret. Let me tell you why.
Last year -- just one week before my 12th birthday -- my doctor reached out to my family and asked me if I wanted to enroll in a clinical trial. Here's why I decided to say yes.
As part of its Building Trust Video series, the Better Business Bureau's (BBB) Wise Giving Alliance is featuring an interview with Preston W. Campbell, III, M.D., president and CEO of the Cystic Fibrosis Foundation.
Many people have asked me why I would want to climb the highest mountain in Africa with no climbing experience. The answer is simple: an undeniable love for my daughter, Jennifer, and a determination to raise money for all those living with cystic fibrosis.