CF MiniCon: Transplant is a virtual event for people with cystic fibrosis, their family members, and caregivers to learn about advanced lung disease and explore all stages of the transplant process.
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CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF Foundation Patient Registry. The information is available in aggregate to the CF community each year through the Data Report, the Highlights Report, and the Care Center Finder.
Because transplant is such a complex process, most transplant centers require that candidates gather the necessary social support to help navigate the transplant process.
You may be waiting for a transplant for a long time. While you're waiting, there are some things you will have to do in addition to your normal routine, to ensure you remain healthy and eligible for transplant.
The benefits of regular exercise and good physical fitness for everyone have become well known in the past 50 years. So, how do these benefits apply to you?
Gyms are wonderful places to exercise, but they can also be great places for germs. Germs can spread as far as six feet (two meters) through droplets released in the air by coughs or sneezes, and can remain in the air on tiny droplets -- ready to be breathed in.
If your child has cystic fibrosis, chances are you have some concerns about school fitness activities like physical education classes or school sports teams. Even though some people with CF have trouble breathing and tire easily, exercise can be especially important.
All too often, we begin an exercise program but quickly quit. Change doesn't happen all at once, nor does it happen at the same rate for different people. Starting at the right pace is important, and knowing your fitness level, or state of readiness, is key to finding the exercise plan that's right for you.
Newborn screening (NBS) is a program run by each state to identify babies born with certain health conditions, including cystic fibrosis. Although a sweat test should ultimately be done to rule out or confirm a CF diagnosis, NBS can help you and your health care providers take immediate steps to keep your child as healthy as possible.
If you have cystic fibrosis-related