The Cystic Fibrosis Foundation is requesting applications with a Letter of Intent for innovative, multi-site quality improvement projects that aim to test tools and processes facilitating remote cystic fibrosis care delivery.
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The following questions and answers address concerns from the community about COVID-19 and school.
This program is intended to facilitate research that will contribute to the development of new therapies or therapeutic strategies to treat cystic fibrosis with an emphasis on advancing CFTR gene repair and replacement approaches.
Every May, the cystic fibrosis community comes together for CF Awareness Month. The theme of this year’s CF Awareness Month is, “Unity in Community.” The Cystic Fibrosis Foundation has shareable resources to help you tell your story on social media this month and any time of year — no matter what your connection to CF is.
Palliative care guidelines provide recommendations to help reduce physical and emotional symptoms and improve quality of life for people with cystic fibrosis throughout their lives.
This competition is awarding one year of free lab and office space at Bakar Labs of University of California Berkeley to applicants with emerging technology in gene editing, gene delivery, and gene therapy/gene insertion that may be applied to CF.
The patient-centered outcomes research (PCOR) training manual provides discrete steps, tools, and resources that CF Center research teams can take to integrate and maintain patient/caregiver-partners in CF research.
Equilibrar la vida escolar y social con la atención diaria para tu fibrosis quística puede ser algo abrumador, especialmente cuando sumas a la lista cómo manejar la alimentación. Sin embargo, cuando sabes de qué manera los alimentos, enzimas y suplementos pueden ayudarte a sentirte más enérgico y fuerte, equilibrar la vida con FQ puede ser más sencillo.
En la fibrosis quística, hay una estrecha relación entre el peso y la función pulmonar – entre mejor sea su IMC, a menudo, mejor será su función pulmonar.
Las siguientes preguntas y respuestas abordan inquietudes de la comunidad sobre el COVID-19 y la escuela.