If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
- Social Life and Relationships
- Parents & Guardians
- Emotional Wellness
- Get Involved
- Lung Transplantation
- Care Team
- Adult Care
- CFTR Modulators
- Coronavirus (COVID-19)
- North American CF Conference
- About the CF Foundation
- Fertility and Reproductive Health
- CF Related Health Conditions
- Clinical Trials
- Infection Prevention and Control
- Our Research Approach
- Teen Care
- Traveling with CF
- Drug Pipeline
- Care Centers
- Family Planning & Parenting
- In Memoriam
- Clinician Resources
- Mental Health
- Our Advocacy Work
- Great Strides
- Patient Registry
- Working with Your Child's School
- In the Spotlight
- Researcher Resources
- Airway Clearance
- Diversity, Equity, and Inclusion
- Aging with CF
- Infant Care
- Patient Assistance
- Choosing Coverage
- Cystic Fibrosis Foundation Therapeutics (CFFT)
- Therapeutics Development Network
- CF-Related Complications
- Health Care Reform
- Treatment Plan
- Clinical Care Guidelines
- (-) Caring for a Child With CF
Protecting your children with CF, at all costs, sounds like a loving thing to do until you consider what it may cost them. To keep a balance between their health and healthy childhood development, my husband and I have learned that it takes a prudent approach with careful and creative decision making.
As a CF mom, I'm always in a state of wonder about whether the choices I'm making are the right ones for my son with CF and the rest of the family.
When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.
Having trouble finding things to keep your toddler occupied during treatments for cystic fibrosis? Here are five tips that do the trick for my 3-year-old son, Major.
Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
There are many ways you can support a family with a child or children with cystic fibrosis. Educating yourself about the disease and its treatments and offering to help without being asked are some of the best ways you can show you care.
I was not emotionally prepared the first time I saw my daughter in her vest. But now, I am thankful to have this device as a part of our daily routine to keep her lungs healthy.
As the parent of children with cystic fibrosis, it can be challenging to know where to turn when they experience unfamiliar health issues. Here are six things I've learned from working with our CF care team and our pediatrician to keep my kids healthy.
Growing up with cystic fibrosis, my parents always encouraged me to take responsibility and be open and honest about my disease. That's why my number one piece of advice for parents of kids with CF is to entrust your child with small bits of responsibility at an early age so that they can take care of themselves down the road.