The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.
The journey to end cystic fibrosis isn't a straight line. It is an evolving map with many paths and unique challenges. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease and ultimately deliver a cure.
The Cystic Fibrosis Foundation is the world's leader in the fight against CF, and our scientific portfolio reflects our drive to provide effective treatments and — one day — a cure to every individual with this disease.
The Cystic Fibrosis Foundation Therapeutics Lab conducts groundbreaking CF research to rapidly advance new therapies.
Learn how your child's
The patient-centered outcomes research (PCOR) training manual provides discrete steps, tools, and resources that CF Center research teams can take to integrate and maintain patient/caregiver-partners in CF research.
There are two main types of clinical studies in CF research. Both are important to move research forward and provide the best outcomes for people with CF.
Clinical trials are critical to developing new treatments for CF. So, how exactly does an experimental drug become an approved therapy?
Choosing to volunteer in a