Today, the Cystic Fibrosis Foundation announced plans to improve lung transplantation for people with CF at an Organ Summit, hosted by the White House. The event focused on new and innovative ways to improve outcomes for individuals waiting for organ transplants and to improve support for living donors.
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Piper Beatty, a two-time double-lung transplant recipient, testifies at an FDA meeting on organ transplantation.
Beth Evans, a 48-year-old with CF, is currently playing the lung transplantation “pre-wait waiting game.” She is sick enough to need new lungs, but not quite sick enough to get them just yet.
After a double-lung transplant, I realized I needed to take care of myself to be a good mother to my son.
Infection prevention and control is so important after a lung transplant, but often I am left with more questions than answers about how to protect myself.
Along with experiencing the typical emotions every parent has when their kids start school, I've also had to teach my son, Maddox, to take responsibility for his cystic fibrosis.
The studies aim to improve our understanding of a common cause of lung transplant failures, a condition known as chronic lung allograft dysfunction (CLAD).
Fitting school, work, and CF treatments into my daily routine is tough, and when I push myself too far, my performance and health suffer. I’m determined, however, to keep going and find a balance that is right for me.
I am so glad I didn't let my fears about handling my cystic fibrosis prevent me from attending college. Here is my checklist of questions to ask yourself if you are still deciding whether to pursue higher education.
Abandoning precautions to return to “normal” will put the health of people who may be at high risk for serious illness from COVID-19 in danger.