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If your child has cystic fibrosis, chances are you have some concerns about school fitness activities like physical education classes or school sports teams. Even though some people with CF have trouble breathing and tire easily, exercise can be especially important.
Revised Law Includes Designated Funding for Rare Diseases
Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials
Legislation to Help Speed Research for Cystic Fibrosis and Other Rare Diseases
Cystic Fibrosis Foundation Drug Development Model Spawns More Than 30 Promising Therapies
Foundation and Legislative Supporters Pushed for Bill
Bill Would Remove Financial Penalties for Participating in Research Studies
Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease