Growing up with cystic fibrosis made me feel different and like I had a lot to overcome. The road that led me to my own personal training business showed me that CF has shaped me in good ways.
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In the fourth installment of our “Ask a Case Manager” series, we discuss what you should consider when making the transition from high school to college.
As a high school nurse, I've worked hard over the last few years to help my three students with CF navigate school safely. A welcome but unexpected change to my plans was helping one of my students get her very own service dog, Rosie.
The pandemic made me a homeschool teacher last spring. After deciding we would continue homeschooling our kids this fall, we agreed we needed to shake things up. Gone was the cluttered kitchen table where we were doing lessons before, and in its place is a “classroom” we made in our garage.
As schools start to reopen, parents, students, and households aim to make the best decisions for those living with cystic fibrosis. Here's your guide to hearing the risks, benefits, and key factors to consider for in-person and distance learning.
Starting college was a big change for me. Now that I have just graduated, I want to share some tips that helped me be successful with teens with CF who may soon be starting college.
Running amidst the beauty of the Kansas countryside helps improve my lung function and mood and has even kindled a passion inside me for the environment.
After fighting an awful infection, I had written off my dreams as 'impossible.' But after encouragement from my family and plenty of training, I made it my mission to not let CF stand in my way.
When I am sick, I find creative ways to exercise, even if it's just walking a short lap around the house to keep my strength up. I also make sure that I eat well and have a game plan for getting good food if I get sent to a hospital.
Along with experiencing the typical emotions every parent has when their kids start school, I've also had to teach my son, Maddox, to take responsibility for his cystic fibrosis.