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CF care centers have worked hard to improve health outcomes. A new initiative seeks to improve the quality of our experiences at care centers. 

A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.

Nationwide Effort to Instill Best Practices for Cystic Fibrosis Care is Honored for Excellence

New Patient Data Posted Online Shows Improvements Across Care Center Network

The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.

The Cystic Fibrosis Foundation hosted a Congressional briefing on February 11 to discuss the benefits of the Foundation's model of specialized, coordinated care and its innovative strategies for drug development, and how they can serve as an example for other rare, chronic diseases.

The cystic fibrosis care model is evolving to support people living longer with CF and their increasingly diverse health needs. Catalyzed by the approval of Trikafta^® and the COVID-19 pandemic, this adaptive and personalized care model encompasses novel ways to connect clinicians and patients.