People with cystic fibrosis and their family members know CF better than anyone, and Community Voice provides opportunities for you to actively impact research, care, and programs for the CF community.
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La fibrosis quística (FQ) es una enfermedad genética. Hace que el cuerpo produzca un moco que es demasiado espeso y pegajoso. El moco obstruye los conductos y otras vías de paso, lo cuál cause problemas, generalmente al respirar y dirigir los alimentos.
Trikafta® es el modulador más nuevo, un tipo de droga que actúa contribuyendo a corregir la proteína CFTR defectuosa. Trikafta tiene el potencial para ser mucho más eficaz que los moduladores actuales.
Women with CF have thicker cervical mucus and can have ovulation issues due to poor nutrition. However, the majority of women with CF are fertile and can become pregnant if appropriate contraception is not used.
By learning about the implications of all transplant-related medications and treatments before undergoing a transplant, men with cystic fibrosis can avoid some of the harmful reproductive side effects and improve their ability to have biological children post-transplant.
Both men and women with CF are just as likely to give or get a sexually transmitted infection (STI) as people without CF. Taking the proper steps to protect yourself is critical to your overall health.
Sex and relationships are essential parts of life. For some people with CF, making the distinction between sexuality and intimacy can be an important step in navigating the ups and downs of having a chronic illness.
For some people with CF, having sex can come with physical discomfort, aggravations and pain. Fortunately, some practical tips and advice can help both men and women with CF fully enjoy their sex lives.
If your cystic fibrosis care team refers you to a lung transplant center, you and your transplant team will have the opportunity to get to know each other.
The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.