The purpose of the Screening Improvement Program mechanism is to catalyze efforts aimed at improving the screening system used for early diagnosis.
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The Cystic Fibrosis Foundation is requesting applications with a Letter of Intent for innovative, multi-site quality improvement projects that aim to test tools and processes facilitating remote cystic fibrosis care delivery.
The following questions and answers address concerns from the community about COVID-19 and school.
Palliative care guidelines provide recommendations to help reduce physical and emotional symptoms and improve quality of life for people with cystic fibrosis throughout their lives.
This competition is awarding one year of free lab and office space at Bakar Labs of University of California Berkeley to applicants with emerging technology in gene editing, gene delivery, and gene therapy/gene insertion that may be applied to CF.
The patient-centered outcomes research (PCOR) training manual provides discrete steps, tools, and resources that CF Center research teams can take to integrate and maintain patient/caregiver-partners in CF research.
Equilibrar la vida escolar y social con la atención diaria para tu fibrosis quística puede ser algo abrumador, especialmente cuando sumas a la lista cómo manejar la alimentación. Sin embargo, cuando sabes de qué manera los alimentos, enzimas y suplementos pueden ayudarte a sentirte más enérgico y fuerte, equilibrar la vida con FQ puede ser más sencillo.
En la fibrosis quística, hay una estrecha relación entre el peso y la función pulmonar – entre mejor sea su IMC, a menudo, mejor será su función pulmonar.
Las siguientes preguntas y respuestas abordan inquietudes de la comunidad sobre el COVID-19 y la escuela.
The Cystic Fibrosis Foundation is requesting letters of intent for research projects that aim to use available clinical trials in organ transplantation specimens and/or clinical data to improve knowledge of chronic lung allograft dysfunction pathogenesis and explore new approaches to detection, prevention, monitoring, or treatment of chronic lung allograft dysfunction.