Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
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When my mom used to ask me what I wanted to be when I grew up, I told her that I wanted to be a dad. The journey to fatherhood with cystic fibrosis is full of obstacles, but I would give anything to pass on the traits I've gained from living with this disease to a child of my own.
Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
Sometimes during weak moments, when my lung function has dropped despite doing everything in my power to hold off the destruction, I think, “What's the point?” Then I remind myself of the larger goal …
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
After being told at the age of 14 that I was probably infertile, the day finally came when this news mattered to me. But with IVF and the support of our church, my wife and I are now the proud parents of three biological children.
I've known for a while that pregnancy isn't an option for me due to complications related to my cystic fibrosis. Now that my husband and I are planning for children, here are some of the thoughts and considerations that impacted our family planning decisions.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
In this “Living Today” video, we learn how Carrie Giddens, a 30-year-old with CF, and her husband, Craig, decided to have their first child through IVF and surrogacy.