When my husband and I were given the thumbs-up from my cystic fibrosis doctor to start trying for our own family, it felt like a small victory 12 years in the making. After being referred to a maternal-fetal medicine physician for a preconception consultation, we are finally taking our first steps toward parenthood.
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As an infertile man with cystic fibrosis, I never thought my wife and I would be on the cusp of our first pregnancy. Fortunately, over the last 18 months, we've learned a thing or two about navigating the in-vitro fertilization (IVF) process.
As a social worker who specializes in helping adults with cystic fibrosis, I realized several years ago that there's a connection between intimacy and sexuality, and the successful management of a daily CF treatment plan. By "partnering with your partner," you can work together to enhance your relationship and minimize the barriers to your care.
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
Looking back on my time spent in the hospital for labor, delivery, and recovery, I now understand the importance of planning and asking questions in preparation for giving birth. Here are some of the questions I wished I had asked before going into labor.
When our son was diagnosed with CF, the clinic director sat with me for hours answering my questions. Since that day, I have wanted to bottle up his advice and become a voice of encouragement for new CF parents.
Breastfeeding when you have CF is more complicated than it is for people who don’t have CF. Here’s what I’ve learned about it with my kids.
The journey my husband and I traveled while trying to conceive our son was stressful but ultimately fruitful. Here’s what I learned during that process.
Although the initial diagnosis for cystic fibrosis seemed to elude our doctors, we knew in our hearts that our son had cystic fibrosis. When we advocated for and got a CF doctor, we began a relationship that became a partnership of mutual trust and respect.