Learning to help my wife access her port is part of our shared journey with CF. Check out our video for some tips and tricks we’ve learned along the way.
Want to know why getting a flu shot is so important? I ignored my early flu symptoms, which ended up spoiling the holidays and leading to an exacerbation.
Although becoming a father to my two boys has been one of the greatest experiences of my life, there is a delicate balance between being a parent and having cystic fibrosis. Fortunately, I've found a couple of tips that help.
Collaborative effort identifies 40 cases of COVID-19 across eight countries; outcomes for this high-risk population were reported in the Journal of Cystic Fibrosis
A cystic fibrosis diagnosis must not disqualify an individual from life-saving care.
Watch our vlog to hear us discuss the upcoming film, Five Feet Apart.
Infection prevention and control is so important after a lung transplant, but often I am left with more questions than answers about how to protect myself.
With Five Feet Apart hitting theaters in March, we've been getting some questions about infection prevention control (IPC) and what the film might mean for the CF community. Here's what our CF center and hospital have been doing to support the IPC guidelines and encourage questions among our patients and families.
Finding out I had COVID-19 was frightening, but much of what my brother and cystic fibrosis taught me about emotional resilience helped me get through it. This is the story of my journey surviving cystic fibrosis and COVID-19.
Is being cooped up at home giving you the blues? Welcome to the world of cystic fibrosis patients! We know all too well what it is like to practice social distancing and to shelter in place.