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Public Policy
Our Public Policy Work
Our federal and state advocacy efforts support our mission of ensuring that everyone with cystic fibrosis has access to high-quality, specialized care. We evaluate policies and legislation through one lens: How would this impact people with CF and their families?
Public Policy
What You Need to Know: Prescription Drug Affordability Boards and People with CF

More states are establishing prescription drug affordability boards to assess and address the cost and affordability of prescription drugs. Learn more about what these reviews mean for you and your loved ones. 

7 min read
About the CF Foundation | Advocacy | Public Policy
Statements, Letters, and Regulatory Comments
By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
Public Policy
Ways to Advocate
Each year, hundreds of volunteers from across the country participate in advocacy events that help state and federal policymakers and decision-makers understand the complexities of living with cystic fibrosis and the importance of having access to affordable, adequate care and supporting research and drug development.
Insurance | Public Policy
Lo que debe saber: acumuladores, maximizadores y personas con FQ

Las personas con fibrosis quística y sus familias se han enfrentado a importantes cargas económicas debido a los programas acumuladores de copago. Familiarícese con estos programas y lo que implican para usted y sus seres queridos.

9 min read
Insurance | Public Policy
What You Need to Know: Accumulators, Maximizers, and People With CF

People with cystic fibrosis and their families have faced significant cost burdens due to copay accumulator programs. Get caught up on these programs and what they mean for you and your loved ones.

8 min read
Advocacy | Antibiotics | Public Policy
Congress: Up the Ante for People With CF

The Cystic Fibrosis Foundation, alongside the CF community, urges Congress to pass the PASTEUR Act and the HELP Copays Act. 

3 min read
About the CF Foundation | Public Policy
Policy Principles That Drive Our Work

With promising new discoveries in the pipeline and advancements we've made in the search for new treatments and a cure, we must continue our work to protect access to adequate, affordable insurance that preserves access to high-quality cystic fibrosis care; and support progress toward new therapies and a cure.

2 min read
About the CF Foundation | Public Policy | Research
Funding for CF Research and Drug Development

Robust funding for the National Institutes of Health helps ensure innovation in basic research and a full pipeline of cystic fibrosis therapies. A well-resourced U.S. Food and Drug Administration helps advance therapies that are safe and effective.

3 min read
About the CF Foundation | Health Care Reform | Insurance | Public Policy
Adequate, Affordable Coverage for People With CF

In a complex and rapidly changing health care system, we support policies that promote adequate, affordable health coverage so people living with cystic fibrosis can receive the high-quality, specialized care they need to live longer, healthier lives.

4 min read