At the Cystic Fibrosis Foundation, we commit to equity, racial justice, diversity, and inclusion as core principles guiding our efforts to provide all people with CF the opportunity to live long, fulfilling lives.
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Receiving a denial for a service or treatment from your insurance company can leave you with many questions. Fortunately, most insurers have a process, called an appeal, by which you can ask them to reconsider their decision to deny coverage.
From budgeting for the everyday, to triaging the unexpected and dreaming of the future, there is a lot to consider when building a financial plan. While living with cystic fibrosis may be costly, financial planning can help ease some of the stress you may feel so you can focus on other areas of your life.
Having a disaster and emergency preparedness plan during a natural disaster or emergency is especially critical when someone has a chronic illness. The Cystic Fibrosis Foundation made the following guide to help you or someone you know with cystic fibrosis prepare for a disaster or emergency.
The Cystic Fibrosis Foundation is aggressively pursuing potential treatments for people with CF who have nonsense and rare mutations who will not benefit from drugs known as modulators, which correct the malfunctioning cystic fibrosis transmembrane conductance regulator (
People living with cystic fibrosis may apply for Social Security Disability Insurance or Supplemental Security Income, programs that serve as a source of income and health insurance coverage for people who are unable to work due to their health status.
Learn more about President and Chief Executive Officer Michael Boyle, MD.
Alongside the cystic fibrosis community, we advocate for policies and programs that promote access to highly specialized CF care and that help advance research and drug development.
View the Cystic Fibrosis Foundation's Board of Trustees and Advisors.
We want to hear from you. Learn how you can contact the Cystic Fibrosis Foundation.