The 23rd annual Ultimate Golf Experience (UGE) brought together a star-studded lineup of entertainers and friends, who gathered in Newport Coast, Calif. to raise funds in the fight against cystic fibrosis.
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Watch the entire leadership conference, including all of the break-out sessions and Medical Hot Topics, from start to finish.
The Compass Resource Database follows the AIRS Standards that require the service to develop, maintain, use, and disseminate an accurate, up-to-date online resource database that contains information about available community resources, including details about the services provided and the conditions under which they are available.
Two-thirds of people with cystic fibrosis in the U.S. experience debt, food insecurity, or housing issues.
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If you receive financial assistance from Vertex GPS™ for a modulator therapy (e.g., Trikafta®, Symdeko®, Orkambi®, or Kalydeco®), you may be impacted by changes Vertex has made to its copay assistance program. The following tips can help you understand how you may be impacted and what next steps may be available to you.
I began fundraising and raising CF awareness soon after my son, Aidan, was diagnosed as a baby. After years of successful fundraiser walks, Aidan asked me to stop — opening my eyes to the difference between being a mom of someone with CF and being the person who is living with CF.
From budgeting for the everyday, to triaging the unexpected and dreaming of the future, there is a lot to consider when building a financial plan. While living with cystic fibrosis may be costly, financial planning can help ease some of the stress you may feel so you can focus on other areas of your life.
Many people with cystic fibrosis and their families have questions about their rights as an individual living with a disease.