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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases

Foundation and Legislative Supporters Pushed for Bill

Bill Would Remove Financial Penalties for Participating in Research Studies

Bill will jump-start rebuilding of the antibiotics pipeline that is vital to stave off a looming pandemic.

Vertex’s copay assistance changes add an undue burden for people living with an already expensive, challenging lifelong disease.