Managing cystic fibrosis can feel overwhelming at times — but we’re here to help. Learn how to navigate life with CF.
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At first, it was easy to get my son to do his cystic fibrosis treatments. But as he got older, he started to hide his medications, rather than take them. I finally learned how to get him to see the importance of taking his medications.
In the summer months, some things require special attention for people with cystic fibrosis.
When I was pregnant in the early 2000s, there was little information available about cystic fibrosis and pregnancy, and I didn't even know what concerns to address with my providers. I am glad more women with CF have shared their family building experience.
Because of the shortened life expectancy projected for those with cystic fibrosis, I was always cautious about the idea of having children. Those fears melted away after I started Trikafta® and received the greatest surprise of my life.
Because of the medications I must take as a result of my lung transplant, I thought it might be too difficult to conceive a baby through in vitro fertilization. I was wrong. I'm expecting a son in November.
Assisted reproductive technology (ART) is often a popular family building option among people with cystic fibrosis. Learn more about common ART techniques to find the right family building method for you.
By learning more about the pros and cons of adoption for a person with cystic fibrosis, you can ultimately decide if it is the right family building option for you.
After a double-lung transplant, I realized I needed to take care of myself to be a good mother to my son.
Adjusting to life after my newly adopted son’s cystic fibrosis diagnosis has been challenging at times, but I will do all I can to support and advocate for him.