Beth Evans, a 48-year-old with CF, is currently playing the lung transplantation “pre-wait waiting game.” She is sick enough to need new lungs, but not quite sick enough to get them just yet.
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After a double-lung transplant, I realized I needed to take care of myself to be a good mother to my son.
Infection prevention and control is so important after a lung transplant, but often I am left with more questions than answers about how to protect myself.
The studies aim to improve our understanding of a common cause of lung transplant failures, a condition known as chronic lung allograft dysfunction (CLAD).
Adjusting to life after my newly adopted son’s cystic fibrosis diagnosis has been challenging at times, but I will do all I can to support and advocate for him.
I believe my passion for science and math — and the unique perspective cystic fibrosis has given me — will help me make an impact as a pharmacist.
My son who has cystic fibrosis required extensive treatment as a toddler, which I believe had a traumatic effect on his mental health. With the help of therapy, I have helped him learn how to self-advocate and use coping strategies for his anxiety, starting when he was just 4 years old.
My lung transplant journey was long and, at times, full of uncertainty. Now that I have new lungs, I want to live my life to the fullest and honor my donor while I do.
Getting a double-lung transplant has been a life-changing journey. Along the way, I've had to deal with changes in my mental health and the struggle to keep my survivor guilt in check.
As a social worker, my career has been primarily focused on crisis intervention and psychiatric hospitalizations for those with mental illness. It wasn't until I received a double-lung transplant that I learned firsthand just how important mental health and trauma management can be.