Facing the challenges of cystic fibrosis is something no one should have to do alone. Fortunately, I have been able to rely on my support system to give me strength when I wasn't sure if I'd be able to continue the fight.
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Not many people can say they had a second chance at life. But, thanks to organ donation, I can. And I'm not just alive -- I'm living. My feet hit the floor every morning because there is no better motivation than clear purpose, which for me is motherhood.
Not having a roadmap for life wasn't a problem when I thought I wouldn't be around long enough to take the trip. A double lung-transplant has me rethinking this belief.
To help ensure your child's social, emotional, medical, and educational needs are being met at school, you may consider requesting an evaluation for an individualized education program or a 504 plan through your child's school.
When there is more than one person with CF in your school, it is essential that they be kept a minimum of 6 feet (2 meters) apart from each other. Germs can spread as far as 6 feet through droplets released in the air when people cough or sneeze.
The Cystic Fibrosis Foundation has been carefully following the story of a 10-year-old girl with cystic fibrosis who has severe lung disease and has been on a pediatric lung transplant list for 18 months. Her family has organized an online petition and filed a lawsuit to help her receive an adult donor lung.
After my lung transplant, I discovered I couldn't keep eating the typical high-calorie CF diet. By learning to practice mindful eating, I have found a new way to enjoy my food.
As the parent of children with cystic fibrosis, it can be challenging to know where to turn when they experience unfamiliar health issues. Here are six things I've learned from working with our CF care team and our pediatrician to keep my kids healthy.
The video of the second plenary at this year's North American Cystic Fibrosis Conference was focused on lung transplantation and is now available to watch online. Having had a lung transplant and as one of the people with CF featured in the video, this particular session had a personal meaning for me.
It is important to understand that having a lung transplant can be expensive before, during, and after the transplant. Your health insurance may cover many of the costs, but not all of them.