If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
CF demands a parent's time, but childhood lessons taught me that all of my children need my love and attention.
There were three important things that my parents did for me while I was growing up that helped me become an independent and positive person.
No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
It is hard to know how much to share with our kids. We want to protect them, but we also need to give them age-appropriate information or else their imaginations will run wild.
Sending our son to school was scary, but we have a plan to keep him healthy.
When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.
Although becoming a father to my two boys has been one of the greatest experiences of my life, there is a delicate balance between being a parent and having cystic fibrosis. Fortunately, I've found a couple of tips that help.
If you want your kids to eat all of their dessert instead of all their vegetables and have a kitchen refrigerator that looks like a pharmacy, then this list is for you.
I felt badly when my son Major was diagnosed with CF, until I realized it was his fight.