The Cystic Fibrosis Foundation has joined 11 other patient groups in filing an amicus brief to challenge the short-term, limited-duration health insurance rule, which threatens access to adequate, affordable coverage for people with cystic fibrosis.
Site Search
I am excited that the Cystic Fibrosis Foundation has surpassed $100 million in research funding through its Infection Research Initiative and that it promises to continue to support infection research at the same rate as the past three years. I am hopeful that the patient community will hear more about funding updates for new infection research as we move forward.
Patient and provider groups urge safeguard for the health and lives of millions of Americans with a bipartisan approach to reform.
Today, the Senate released a new draft of the Better Care Reconciliation Act (BCRA), including an amendment that would allow insurance companies to offer plans not in compliance with critical patient protections in current law.
The organizations urge continued protections for patients.
The organizations called on Congress to take a bipartisan approach to reform.
A nonpartisan group of 18 patient, provider, and consumer groups renewed calls for Congress to act on the Bipartisan Health Care Stabilization Act of 2017 in light of Wednesday's Congressional Budget Office (CBO) report.
The Cystic Fibrosis Foundation joined 28 patient and consumer organizations in responding to new Centers for Medicare and Medicaid Services (CMS) guidance issued by the administration that undermines patient protections granted by the Affordable Care Act.
Responding to the U.S. Department of Health and Human Services final rule on short-term, limited-duration insurance plans, the Cystic Fibrosis Foundation joined 26 other nonpartisan patient and consumer groups to voice concern that these plans will split the market and jeopardize access to affordable, adequate health care for people living with pre-existing conditions.
The treatment has the potential to prevent Aspergillus fungal infections in people who have had a lung transplant.