Bill Would Remove Financial Penalties for Participating in Research Studies
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This week, Congress approved a budget resolution that will allow lawmakers to make certain changes to the Affordable Care Act and Medicaid.
Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
As part of the Cystic Fibrosis Foundation's ninth annual Teen Advocacy Day, 162 advocates from 38 states met with elected officials in Washington, D.C., to tell their stories and make sure the cystic fibrosis community is heard in ongoing health care reform discussions.
As the Senate considers adding repeal of the Affordable Care Act's (ACA) individual mandate to its tax reform package, a group of 16 nonpartisan patient and consumer groups issued a statement on last week's Congressional Budget Office (CBO) report.