We asked -- and hundreds of you answered -- how you pass the time during long treatments. Check out what the CF community told us when we asked what makes you #morethanCF.
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Showing 1 - 9 of 9 results
Emily Dulcan
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
Mary Lester, R.T.
Our daughter's airway clearance treatment with the vest went more smoothly after we learned a few tricks.
Morgan Rawson
Cystic Fibrosis Foundation Therapeutics Inc. made its first major award last month to advance gene editing research in cystic fibrosis. Editas Medicine Inc. will explore the potential of using what some scientists refer to as “a tiny pair of scissors” to snip out the genetic defect that causes CF.
Susan Schept
The Cystic Fibrosis Foundation is funding research into gene editing techniques to see if they can be used to fix the mutations that cause cystic fibrosis. One of the most popular techniques is CRISPR-Cas9. To see how this might work for CF, watch this video.
Susan Schept
Close to 40,000 people in the U.S. have cystic fibrosis, a rare genetic disease. The majority of people with CF are diagnosed by age 2 thanks to newborn screening tests. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make decisions about your health care.
I've found an airway clearance routine that works for me by relying on knowledge of my body and breath control, combining conventional airway clearance with yoga breathing techniques.
Elaine K. Malik
When our daughter was diagnosed with cystic fibrosis, all I could think about was walking into that first CF clinic appointment and walking out with “the vest.” Although transitioning to the vest was the change I feared the most, it's been a welcome change to our once-difficult routine.
Kate Johnson
I went through my first surgery recently. I want to share what I learned during my recovery.
Zoey Harrison