People living with cystic fibrosis and their families face complicated issues related to getting the care they need. CF Foundation Compass makes sure that no one has to do it alone.
People living with cystic fibrosis may apply for Social Security Disability Insurance or Supplemental Security Income, programs that serve as a source of income and health insurance coverage for people who are unable to work due to their health status.
Many people with cystic fibrosis and their families have questions about their rights as an individual living with a disease.
Understanding insurance basics and knowing what to look for when choosing new health coverage can help you get a plan that best suits your individual needs.
Receiving a denial for a service or treatment from your insurance company can leave you with many questions. Fortunately, most insurers have a process, called an appeal, by which you can ask them to reconsider their decision to deny coverage.
In a complex and rapidly changing health care system, we support policies that promote adequate, affordable health coverage so people living with cystic fibrosis can receive the high-quality, specialized care they need to live longer, healthier lives.
Active cycle of breathing technique (ACBT) combines different breathing techniques that help clear mucus from the lungs in three phases. The first phase helps you relax your airways. The second phase helps you to get air behind mucus and clears mucus. The third phase helps force the mucus out of your lungs.
There are different ways to clear your airways. Most are easy to do. Infants and toddlers will need help from a parent or caregiver. Older kids and adults can choose airway clearance techniques (ACTs) that they can do on their own.
Although cystic fibrosis affects many parts of the body, the focus is often on the lungs because of the disease's effect on breathing.
Autogenic drainage (AD) means “self-drainage” and uses different speeds of breathing to move mucus. To do it, your respiratory therapist can teach you how to control your breaths. You will learn how fast and deeply to breathe to fill certain parts of your lungs with air. AD can take some practice and is usually recommended for people age 8 and older.