Legislation to Help Speed Research for Cystic Fibrosis and Other Rare Diseases
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4 min read
The Cystic Fibrosis Foundation has followed the health care reform discussion closely. While the Foundation has not taken a position on any particular health reform bill, we have consistently and aggressively encouraged officials to include specific reforms that are important for the treatment of cystic fibrosis.
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2 min read
News
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Cystic Fibrosis Foundation Drug Development Model Spawns More Than 30 Promising Therapies
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3 min read
Foundation and Legislative Supporters Pushed for Bill
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3 min read
Bill Would Remove Financial Penalties for Participating in Research Studies
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4 min read
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3 min read
Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
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2 min read
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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3 min read