Join us via live stream for the 2016 CF Foundation Volunteer Leadership Conference and make your voice heard.
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I thought I would never get married -- I didn't want to burden anyone else with my CF. But, after meeting Ramon, we knew we wanted to get married and the only gift we wanted was time.
For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.
I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
Our daughter's airway clearance treatment with the vest went more smoothly after we learned a few tricks.
We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!
Paul participates in Great Strides, advocates on the Hill and has even launched a CF fundraiser. Oh, and he's only 18.
When he isn't with his family or at work, Jeff Burnett can be found leading a team of 30 cyclists and training for the Cystic Fibrosis Foundation's CF Cycle for Life event.
A reality show inspired this family to create an ingenious fundraising and awareness event for cystic fibrosis.