People with cystic fibrosis continue to live longer and healthier lives, and the Patient Registry data support this general trend. To understand what this means for our community, however, it is important to understand how these numbers are calculated and what they represent.
CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF Foundation Patient Registry. The information is available in aggregate to the CF community each year through the Data Report, the Highlights Report, and the Care Center Finder.
Regular CF care center visits are important to maintain your health. The following tips are intended to help you make informed decisions to protect yourself and others from catching and spreading germs while at a care center visit, in the hospital or in any other health care setting.
The Burkholderia cepacia complex (B. cepacia) consists of different species of bacteria that are found in the natural environment. Some of these species pose serious risks to the health of a person with cystic fibrosis.
Germs are everywhere, but there are things you can do to reduce your risk of getting sick. The following tips are intended to keep you informed so you can make the best decisions for yourself.
Medical studies show that people with CF are at particular risk of spreading certain germs among others with the disease. This is known as cross-infection.
Aspergillus species is a fungus that often lives in the airways of children and adults with cystic fibrosis. When people develop an allergic reaction to Aspergillus, it is called allergic bronchopulmonary aspergillosis.
Germs can spread in a number of ways, but the most common are by direct and indirect contact and through the air.
MRSA stands for methicillin-resistant Staphylococcus aureus. The bacteria can cause an infection on the skin and in the lungs. It is resistant to several common antibiotics. But MRSA can be treated with some antibiotics, nose drops, and other therapies.
Nontuberculous mycobacteria are a group of bacteria that live in soil, swamps, and water sources.