CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF Foundation Patient Registry. The information is available in aggregate to the CF community each year through the Data Report, the Highlights Report, and the Care Center Finder.
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Nationwide Effort to Instill Best Practices for Cystic Fibrosis Care is Honored for Excellence
New Patient Data Posted Online Shows Improvements Across Care Center Network
The following questions and answers address concerns from the community about COVID-19 and school.
A cystic fibrosis diagnosis must not disqualify an individual from life-saving care.
Regular CF care center visits are important to maintain your health. The following tips are intended to help you make informed decisions to protect yourself and others from catching and spreading germs while at a care center visit, in the hospital or in any other health care setting.
The Burkholderia cepacia complex (B. cepacia) consists of different species of bacteria that are found in the natural environment. Some of these species pose serious risks to the health of a person with cystic fibrosis.
Germs are everywhere, but there are things you can do to reduce your risk of getting sick. The following tips are intended to keep you informed so you can make the best decisions for yourself.
Medical studies show that people with CF are at particular risk of spreading certain germs among others with the disease. This is known as cross-infection.