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I began fundraising and raising CF awareness soon after my son, Aidan, was diagnosed as a baby. After years of successful fundraiser walks, Aidan asked me to stop — opening my eyes to the difference between being a mom of someone with CF and being the person who is living with CF.
Managing cystic fibrosis can feel overwhelming at times — but we’re here to help. Learn how to navigate life with CF.
At first, it was easy to get my son to do his cystic fibrosis treatments. But as he got older, he started to hide his medications, rather than take them. I finally learned how to get him to see the importance of taking his medications.
Having already been underwhelmed by Orkambi® and Symdeko®, I was skeptical about whether the triple-combination therapy would live up to the hype. However, after a month of being on Trikafta®, I feel improvements in my lung function, weight, and overall energy.
The CF Foundation is the world’s leader in the search for a cure for cystic fibrosis. We are dedicated to attacking CF from every angle. Help us by making a donation today. Every gift we receive – big or small – helps us get one step closer to finding a cure for cystic fibrosis.
By participating in one of our many fundraising events — or starting your own — you can bring together friends, family, and others you know to raise funds in support of the CF Foundation's mission: to find a cure for cystic fibrosis.
You're invited to join the 65 Roses® Club, a special group of Cystic Fibrosis Foundation donors dedicated to finding a cure for CF by providing monthly support. There are many benefits to becoming a member of the 65 Roses® Club, such as receiving a special biannual newsletter, IMPACT, our annual 65 Roses® calendar and exclusive invitations to your local chapter's events. Help accelerate progress and join today!
Having a friend with cystic fibrosis has made me determined to do all that I can to help her fight for a cure. That includes leading the charge for making legacy donations to the Cystic Fibrosis Foundation.
The imagination can run wild thinking of all the possible scenarios that could happen after trying the new triple-combination modulator, Trikafta™. Managing expectations -- while allowing yourself to hope -- is how I choose to approach my wait for the new drug.