After my son, Zach, was diagnosed with this cystic fibrosis, my wife and I began to understand the many challenges associated with it. We quickly realized we wanted to support the Cystic Fibrosis Foundation so we could help our son in every way possible. Here are some fundraising ideas that were simple, yet effective, for us in securing donations.
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I kept at riding because every time my lungs would get tight, I thought of people with CF who would give anything to be out of breath just because they were riding up a hill.
This year, Cystic Fibrosis Advocates inspired new champions in Washington, D.C. and in state capitols across the country to take action on critical CF-related issues.
Revised Law Includes Designated Funding for Rare Diseases
I'm so excited for the 2017 Volunteer Leadership Conference in Dallas, Texas! We can't wait to share the conference with everyone both in Dallas and via the live stream.
Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials
This month, 15-year-old Molly Bonnell and her sister Emily, 13, who have cystic fibrosis, discovered how easy it is to make their voices heard in Congress -- without leaving their living room.
It wasn't until my son was born with cystic fibrosis that I became motivated to raise money for a cause. In the past three years, I have learned quickly how to manage my time and maximize donations.
Legislation to Help Speed Research for Cystic Fibrosis and Other Rare Diseases