The U.S. House of Representatives and the Senate have both incorporated the Expanding and Promoting Expertise in Review of Rare Treatments Act (EXPERRT Act), championed by the CF Foundation, as part of a legislative package to reauthorize the U.S. Food and Drug Administration's (FDA) system for evaluating new prescription drugs and devices.
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Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Drugs
The 23rd annual Ultimate Golf Experience (UGE) brought together a star-studded lineup of entertainers and friends, who gathered in Newport Coast, Calif. to raise funds in the fight against cystic fibrosis.
Watch the entire leadership conference, including all of the break-out sessions and Medical Hot Topics, from start to finish.
206 care center directors sign a letter citing clinical consequences if decision moves forward.
Support our mission with a grant: We welcome support from private, corporate, and family foundations.
Las personas con fibrosis quística y sus familias se han enfrentado a importantes cargas económicas debido a los programas acumuladores de copago. Familiarícese con estos programas y lo que implican para usted y sus seres queridos.
Bill will jump-start rebuilding of the antibiotics pipeline that is vital to stave off a looming pandemic.
I began fundraising and raising CF awareness soon after my son, Aidan, was diagnosed as a baby. After years of successful fundraiser walks, Aidan asked me to stop — opening my eyes to the difference between being a mom of someone with CF and being the person who is living with CF.