More than 60 CF Foundation volunteers came together in Washington, D.C. to speak with their elected officials on behalf of friends and family members affected by the disease during March on the Hill, the Cystic Fibrosis Foundation's signature annual advocacy event.
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Teen volunteers from 27 states across the country gathered in Washington, D.C., on June 26 to advocate for friends and loved ones who have cystic fibrosis during the Cystic Fibrosis Foundation's sixth annual Teen Advocacy Day.
CF Foundation President and CEO Robert J. Beall, Ph.D. testified today before the House of Representatives' Energy and Commerce Committee at a hearing entitled, “21st Century Cures: Incorporating the Patient Perspective.”
Lack of insurance coverage for cystic fibrosis-related medications remains a top concern for people with CF and their families, a recent study found.
In 2014, the Cystic Fibrosis Foundation and advocates across the country played a vital role in shaping issues important to the CF community. CF advocates attended more than 500 meetings with elected officials and sent them more than 60,000 messages advocating on behalf of people with CF.
The CF Foundation is the world’s leader in the search for a cure for cystic fibrosis. We are dedicated to attacking CF from every angle. Help us by making a donation today. Every gift we receive – big or small – helps us get one step closer to finding a cure for cystic fibrosis.
By participating in one of our many fundraising events — or starting your own — you can bring together friends, family, and others you know to raise funds in support of the CF Foundation's mission: to find a cure for cystic fibrosis.
You're invited to join the 65 Roses® Club, a special group of Cystic Fibrosis Foundation donors dedicated to finding a cure for CF by providing monthly support. There are many benefits to becoming a member of the 65 Roses® Club, such as receiving a special biannual newsletter, IMPACT, our annual 65 Roses® calendar and exclusive invitations to your local chapter's events. Help accelerate progress and join today!
With promising new discoveries in the pipeline and advancements we've made in the search for new treatments and a cure, we must continue our work to protect access to adequate, affordable insurance that preserves access to high-quality cystic fibrosis care; and support progress toward new therapies and a cure.