The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.
The Success with Therapies Research Consortium helps the clinical study of interventions so people with cystic fibrosis can improve the consistency of their day-to-day management of their CF to optimize health outcomes and quality of life.
The Ultimate Golf Experience is the Cystic Fibrosis Foundation's premier golfing event. Each year, guests and friends of the Foundation come together for golf, live entertainment, and luxurious accommodations at one of America's most pristine golf resorts, all in the name of adding tomorrows for those with cystic fibrosis.
Our corporate champions are an important part of our progress -- with corporate supporters by our side, we continue to advance our goal -- to make CF stand for Cure Found.
The journey to end cystic fibrosis isn't a straight line. It is an evolving map with many paths and unique challenges. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease and ultimately deliver a cure.
Support our mission with a grant: We welcome support from private, corporate, and family foundations.
CF Foundation national and local events, provide your company with opportunities to align with a results-driven organization and better position your brand.
The Cystic Fibrosis Foundation is the world's leader in the fight against CF, and our scientific portfolio reflects our drive to provide effective treatments and — one day — a cure to every individual with this disease.