Enteral tube feedings are an important treatment option in cystic fibrosis when oral intake is not adequate to meet nutritional goals. A multidisciplinary Cystic Fibrosis Foundation panel developed consensus evidence-based guidelines on all aspects of care regarding enteral feeding.
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These guidelines were created to help care center teams to integrate screening and treating depression and anxiety into comprehensive cystic fibrosis care.
As early cystic fibrosis-related diabetes (CFRD) may be clinically silent, these guidelines highlight the importance of regular screening. Management recommendations focus on insulin therapy and ongoing care by a team with knowledge of CF and diabetes.
Prevention, early recognition, and treatment of cystic fibrosis-related bone disease are imperative to sustain bone health. This guideline provides recommendations regarding screening and treatment to optimize bone health in people with CF.
Chronic infection with P. aeruginosa is associated with increased morbidity and mortality. Effective regimens include antibiotic therapy for newly acquired infection and routine surveillance with oropharyngeal cultures.
Working alongside the CF community, the Foundation has fostered the development of more than a dozen CF treatments — an unprecedented number in a short span of time — and helped add decades of life for people with CF. And while therapies such as Trikafta® have had an incredible impact on the lives of those with CF, there are still many people with this disease who do not benefit from existing treatments. Our goal is to cure cystic fibrosis.
We are excited that this spring, in Washington, DC, from March 13-16, 2024, there will be an enriched conference experience that combines March on the Hill (MOH) and our Volunteer Leadership Conference (VLC) into one extraordinary event for our leading volunteers with the theme of Hope in Action.
National Teams raise awareness about cystic fibrosis, and raise funds to support the Foundation's mission to find a cure for CF.
A well-performed and well-interpreted sweat test is the gold standard for accurately diagnosing cystic fibrosis. These guidelines were developed by consensus based on expert opinion and a review of the medical literature.