When my mom used to ask me what I wanted to be when I grew up, I told her that I wanted to be a dad. The journey to fatherhood with cystic fibrosis is full of obstacles, but I would give anything to pass on the traits I've gained from living with this disease to a child of my own.
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Being a part of the CF Foundation has given me so much more than I could have ever imagined. That is why my wife, Nanette, and I have made a commitment to people with cystic fibrosis for years to come by making a legacy gift, an enduring statement of our values.
Sometimes during weak moments, when my lung function has dropped despite doing everything in my power to hold off the destruction, I think, “What's the point?” Then I remind myself of the larger goal …
After being told at the age of 14 that I was probably infertile, the day finally came when this news mattered to me. But with IVF and the support of our church, my wife and I are now the proud parents of three biological children.
I've known for a while that pregnancy isn't an option for me due to complications related to my cystic fibrosis. Now that my husband and I are planning for children, here are some of the thoughts and considerations that impacted our family planning decisions.
Having spent her career working for a cure for cystic fibrosis, Patty Burks is still not content. She wants to remember her son in a way that makes a difference for others. That's why she has made the CF Foundation a beneficiary of her life insurance policy. This gift to the Foundation meets a need in her heart.
Read how one grandmother is adding tomorrows.
In this “Living Today” video, we learn how Carrie Giddens, a 30-year-old with CF, and her husband, Craig, decided to have their first child through IVF and surrogacy.
Every year, hundreds of thousands of people raise millions of dollars for Great Strides -- the CF Foundation's largest national fundraising event. But did you know that the staff of the national office in Bethesda, Md., form their own department teams and also raise money alongside the CF community?
Meet my son Kiran, a happy, charming and adorable 18-month-old with CF. We're telling his story this #GivingTuesday to raise awareness and funds for the CF Foundation. Donate today.