Unless you have cystic fibrosis or live with someone who does, it's hard to truly understand the full impact of this disease. Through the power of storytelling, these CF community members are helping to bridge that gap of understanding. Check out the latest books and films created by people intimately familiar with CF.
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Here's how being open and honest about all my symptoms, cystic fibrosis-related or not, with my health care providers has improved my overall health care.
Being a mom is a tough job; being a CF mom is an even tougher job. But, finding ways to stay organized and maintain a routine has made it a bit easier.
If you have cystic fibrosis like I do, then you know how important it is to protect our health care. That's why we must advocate for three key policy principles that are critical to allowing people with CF to access the high-quality, specialized care we need.
During a health crisis, we can focus on our pain so much that we don't take time to acknowledge the pain of others.
Austin Faught started advocating for those with cystic fibrosis in 2016 when his health insurer dropped his son's CF care team from its plan. He has found that advocacy gets easier with practice.
Register for the 2017 North American Cystic Fibrosis Conference (NACFC) live-streamed sessions and get access to insight about many aspects of CF.
As a mom to two children with cystic fibrosis, I know what works best for them and can identify the subtle signs of how they are feeling before anyone else. This makes me a valuable member of our CF care team.
As the husband of Rebecca, who has cystic fibrosis, I've been criticized more than once for joking too much throughout our journey with CF. But if there is one thing my wife has taught me, it's that amazing courage is not improved by focusing on the imposing strength of the disease; it's magnified by laughing in its face.
When it comes to my cystic fibrosis care team, I've learned that it's often the little moments that matter most.