In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
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Aliza Fink, D.Sc.
CF care centers have worked hard to improve health outcomes. A new initiative seeks to improve the quality of our experiences at care centers.
Rich DeNagel
A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
Stacey Falardeau
Nationwide Effort to Instill Best Practices for Cystic Fibrosis Care is Honored for Excellence
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New Patient Data Posted Online Shows Improvements Across Care Center Network
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4 min read
The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
Cindy George
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