Many people might be put off by the thought of participating in a clinical trial. The increasing life expectancy for CFers like me, however, is a testament to the impact medical research can have on the development of therapies for cystic fibrosis.
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No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
Last August, I watched all of my friends head off to school and all of a sudden I was the only one left still living at home. I hadn't even graduated high school, but I was getting to experience the time-honored and popular British tradition of a taking a gap year.
Sending our son to school was scary, but we have a plan to keep him healthy.
If your child has cystic fibrosis, chances are you have some concerns about school fitness activities like physical education classes or school sports teams. Even though some people with CF have trouble breathing and tire easily, exercise can be especially important.
Drs. Drucy Borowitz and Manu Jain share new developments in drugs that will treat the underlying cause of cystic fibrosis.
Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials
This month, 15-year-old Molly Bonnell and her sister Emily, 13, who have cystic fibrosis, discovered how easy it is to make their voices heard in Congress -- without leaving their living room.