Learn how Rachel Kinney manages her CF while away at college.
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Check out a post by Brandon, an adult with CF, on clinical trials and why he found one to be rewarding even though the drug wasn't ultimately approved.
Learn how one college junior went from struggling with CF at school to managing it with flying colors.
Bill Would Remove Financial Penalties for Participating in Research Studies
The only thing that is certain in my life is the uncertainty of my teenage daughter's next hospital stay. Despite this, she has somehow managed to supervise her own academic life from a hospital room.
Looking back at my freshman year, I realize that putting college before my CF wasn't the first thing I had all wrong.
CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
Today, the Cystic Fibrosis Foundation announced a new award of up to $2 million to Eloxx Pharmaceuticals Inc. to support the global Phase 2 clinical program of ELX-02, a potential therapy to treat people with cystic fibrosis who have nonsense mutations.
The following questions and answers address concerns from the community about COVID-19 and school.