No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
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Last August, I watched all of my friends head off to school and all of a sudden I was the only one left still living at home. I hadn't even graduated high school, but I was getting to experience the time-honored and popular British tradition of a taking a gap year.
Sending our son to school was scary, but we have a plan to keep him healthy.
Halloween, April Fools' Day, and Mother's Day may be average American holidays for most, but for me, they mark three important days in my long, emotional journey toward a new pair of lungs.
Finding a Balance Between CF and High School
After my transplant team said I was too sick to undergo a double-lung transplant, I was determined to get well enough so that I could.
Growing up, I never had any doubts that I would one day go off to college and pursue a career, despite having cystic fibrosis. But when the time came to prepare to attend Marquette University and live on my own in Milwaukee, I knew I would need a plan in order to make my transition to college life as smooth as possible.
As a teacher with cystic fibrosis, I find it no surprise that heading back to school can be a shock to my system. But over the years, I've learned that if I can remember three main things, I can stay healthy through the transition back to school.
After two double-lung transplants my lungs don't have CF anymore, but the rest of me still does. In a very real way, CF isn't "behind me" at all. And that's why I continue to fight.
During my five months in Denmark for a study abroad program, I not only learned more about myself and others, but I became more confident in my ability to take care of myself. Don't let CF stand in the way of experiencing that, or any other dreams.