If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
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By learning about the implications of all transplant-related medications and treatments before undergoing a transplant, men with cystic fibrosis can avoid some of the harmful reproductive side effects and improve their ability to have biological children post-transplant.
Listening to my body -- and hearing what it has to say -- is not always what I want to do, but what I need to do.
Because transplant is such a complex process, most transplant centers require that candidates gather the necessary social support to help navigate the transplant process.
Want to know why getting a flu shot is so important? I ignored my early flu symptoms, which ended up spoiling the holidays and leading to an exacerbation.
Before my double lung transplant, I experienced major body aches and poor posture due to my cystic fibrosis. Here are some of the ways I found to help combat this and ease some of my pain.
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.
Life with cystic fibrosis is complicated, but there are ways to make things run a bit more smoothly. Here are some of my favorite ways to stay organized with CF.
Going on a camping trip is a great way to relax and unplug from the daily grind, but when you have cystic fibrosis, unplugging requires some planning and strategy.