Learn how one college junior went from struggling with CF at school to managing it with flying colors.
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During our family round trip from Oklahoma to Florida, I learned a thing or two about traveling with a CF tot.
Thinking of how you will take care of your health while traveling with CF can be very intimidating. For 28-year-old Stacy Motenko, preparation is the key.
After what seems like an hour and too many clicks to count, you finally did it. You booked your flight! A couple weeks leading up to your departure date, panic starts to set in. You go into operation “no one better get me sick” mode.
Hear how frequent flier Stacy Motenko keeps herself organized as she turns traveling with CF into a manageable affair.
I grew up on a farm in the countryside in Sweden. My younger brother also has cystic fibrosis, so money was always a little tight in my family, due to the costs of treatments. My classmates would often brag about places they had been on their vacation, England, Stockholm, Greece, and I was very envious.
The only thing that is certain in my life is the uncertainty of my teenage daughter's next hospital stay. Despite this, she has somehow managed to supervise her own academic life from a hospital room.
Planning a last-minute vacation before the end of the summer? We’ve got you covered! All week long we’ll be sharing tips, advice and personal stories on traveling with CF.
Looking back at my freshman year, I realize that putting college before my CF wasn't the first thing I had all wrong.
The following questions and answers address concerns from the community about COVID-19 and school.