Recipients include eight innovative programs from around the country that serve the CF community.
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Watch the entire leadership conference, including all of the break-out sessions and Medical Hot Topics, from start to finish.
When Rickey Powell’s first child, Miles, was born, he never anticipated that Miles would spend nearly a month in the NICU. Miles was not gaining weight and, after several long weeks, was diagnosed with cystic fibrosis. Two years later, Rickey’s second child, Marley, was born. She, too, was born with CF.
When the pandemic started, I started to feel lost and disconnected. That changed when I was introduced to a new program from the Cystic Fibrosis Foundation that taught me how to share my CF story with confidence.
This year’s awardees showcase the diversity of journeys in the cystic fibrosis community.
Mascaro Construction employees have a strong track record of giving back to advance the CF Foundation’s mission. A giving culture is what the late founder, Jack Mascaro, first established when he started the highly successful company.
I was not emotionally prepared the first time I saw my daughter in her vest. But now, I am thankful to have this device as a part of our daily routine to keep her lungs healthy.
NextBreath is for people with cystic fibrosis who are living with advanced disease or experiencing lung health complications and for their family members and caregivers.
CF FamilyCon welcomes the whole CF family — people with cystic fibrosis and the friends and family who love them.