Getting sick for a person with CF is so much more than a couple days off watching Netflix. It can be really scary. But you can help us stay healthy this cold and flu season.
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Finding out I had COVID-19 was frightening, but much of what my brother and cystic fibrosis taught me about emotional resilience helped me get through it. This is the story of my journey surviving cystic fibrosis and COVID-19.
Because of the threat to my health caused by COVID-19, I had to give up my dream job as a nurse practitioner. Now I am asking for paid leave expansion.
The imagination can run wild thinking of all the possible scenarios that could happen after trying the new triple-combination modulator, Trikafta™. Managing expectations -- while allowing yourself to hope -- is how I choose to approach my wait for the new drug.
As a CF pharmacist, I've received many questions about complementary and alternative medications and supplements over the years. Although I am admittedly not the first person to “jump at the idea,” I always make sure to stay informed about available products and listen to my patients without judgement so that we can partner together to develop the best treatment plans for them.
Infection prevention and control is so important after a lung transplant, but often I am left with more questions than answers about how to protect myself.
When the news of the Trikafta™ approval came out, I was simultaneously excited for people with CF that would benefit and disappointed that another new medicine is passing me by. But, hearing about the next wave of research into a cure for ALL people with CF has me looking forward to the future.
I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don't want him to have any setbacks.
We depend on antibiotics to help us control and get rid of dangerous infections. But, in addition to the near-miraculous power to heal, many antibiotics come with serious side effects, too.
I began taking prescribed medication to control my cystic fibrosis-related pain. Soon, the medication tried to control me.