The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.
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Ever wonder about an aspect of cystic fibrosis that you would love someone to research? Find out how you can submit a question in our first community-driven research project.
Emma D’Agostino
In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
Aliza Fink, D.Sc.
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It's that dreaded time again ... Cough, cough, sneeze ... Yuck! I'm prepared, though. And you can be too. Check out the top nine tips I swear by for staying healthy during cold and flu season.
Somer Love
For adult with CF Brent Pace, staying healthy isn't about avoiding life. It's about living mindfully.
Dora Nagy