Cystic Fibrosis Foundation Drug Development Model Spawns More Than 30 Promising Therapies
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Foundation and Legislative Supporters Pushed for Bill
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Bill Would Remove Financial Penalties for Participating in Research Studies
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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
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Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
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By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.