I thought I would never get married -- I didn't want to burden anyone else with my CF. But, after meeting Ramon, we knew we wanted to get married and the only gift we wanted was time.
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For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.
I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
When we set out to create the Foundation's new website, there was a lot we wanted to accomplish. Our goal was a modern, visually compelling CFF.org that provides more helpful information for the millions of people who visit each year. But we wanted to do something much more, too.
Ever wonder, “Does my donation make a difference?” For people with cystic fibrosis like Jake Bachman, your generosity will give him a chance for the future. This Giving Tuesday, give to an organization that's determined to find a cure for all people with cystic fibrosis.
As the mother of a child with CF and volunteer for the CF Foundation, I know first-hand the extraordinary things that Dr. Bob Beall has done for our community, and I am grateful for the legacy of hope that he leaves behind.
An award-winning chef shares his recipe for people with cystic fibrosis, just in time for the holidays.
A reality show inspired this family to create an ingenious fundraising and awareness event for cystic fibrosis.
More than 800 guests gathered to celebrate the therapeutic benefits that surfing brings to people with CF at the 8th annual Pipeline to a Cure gala.
Creative use of technology can help build a more connected community. Read on to learn about the Cystic Fibrosis Foundation's innovative efforts to include more people with cystic fibrosis.