As we reflect on 2016, we are so thankful to our friends around the country, dedicated researchers, care center professionals, volunteers and, most of all, those of you living with CF.
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No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
Last August, I watched all of my friends head off to school and all of a sudden I was the only one left still living at home. I hadn't even graduated high school, but I was getting to experience the time-honored and popular British tradition of a taking a gap year.
As a member of the IT department at the CF Foundation, it's easy to sometimes feel disconnected from the people we serve. This is why the Foundation's Speaker Series, which recently featured the story of Sara and Michael Dun, is so meaningful.
Through a new Speaker Series, the Foundation invites people with cystic fibrosis and their families to the national office to share their stories and help Foundation employees better connect with members of our community.
Sending our son to school was scary, but we have a plan to keep him healthy.
Dana Handler, an intern with the Foundation's advocacy team, recounts her experience and explains her renewed confidence that we'll find a cure for cystic fibrosis.
Finding a Balance Between CF and High School
With the opportunity to broaden our scope, we are opening up everything we do to people living with CF -- and we want to hear from you.
For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.